Listening to parents: The impact of stillbirth and neonatal death

Wednesday 9 April 2014
Venue: Royal Society Of Medicine, 1 Wimpole Street, LONDON, W1G 0AE

Background to the Study on Listening to Parents
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We know that the impact of stillbirth and neonatal death on families is enormous. However, it is important to understand both commonalities and differences in the experiences of individual women and their families. With the help of Sands and Bliss a team at the National Perinatal Epidemiology Unit (NPEU) in Oxford recently carried out the first national survey of the experiences of women in England who had stillborn babies or babies who died in the neonatal period.

The aim was to explore and describe the care provided and women's perceptions of that care and the experience of their partners. As part of the NPEU programme of work funded by the Department of Health it is hoped that the research findings will provide up-to-date information about women's maternity care, and that the experiences of women along with their partners' can be used to help improve services for women and families experiencing such a loss.

Key background information and findings of the study will be presented by the study team, followed by a midwife, obstetrician, and neonatologist contextualising these and reflecting on their own experiences. A researcher will also present findings from a study which focuses on women moving on to their next pregnancies. Leaders in agenda-setting in this important area from Sands and Bliss will help frame parents' needs more directly in the context of current services and care and discussion panels will enable both exploration and debate of the issues most relevant to parents.

For parents:

Although this meeting is aimed at a professional audience we welcome members of the public.

Discounted charges are available on request to parents and families who have been affected by this issue. To request a booking form please email maternity@rsm.ac.uk

If you are affected by this issue and would like further support we recommend contacting the charities Bliss (www.bliss.org.uk/) or Sands (www.uk-sands.org/). Support lines: Bliss: 0500 618140 Sands: 020 7436 5881

9.30 am Registration

Learning from 'Listening to parents'

10.00 am Welcome and introduction

Marian Knight, Policy Research Unit for Maternal Health and Care, National Perinatal Epidemiology Unit, University of Oxford

10.05 am The context and extent of the problem
Jenny Kurinczuk, National Perinatal Epidemiology Unit, University of Oxford

10.25 am The 'Listening to parents' study
Maggie Redshaw, National Perinatal Epidemiology Unit, University of Oxford

10.45 am Parents' needs and experience
Rachel Rowe, Policy Research Unit for Maternal Health and Care, National Perinatal Epidemiology Unit, University of Oxford

11.10 am Tea and coffee break

11.40 am Information and explanation: Understanding what happened
Jane Henderson, Policy Research Unit for Maternal Health and Care, National Perinatal Epidemiology Unit, University of Oxford

12.05 pm Discussion panel

12.45 pm Lunch break

Changing practice and care

1.45 pm The midwifery perspective on listening to parents
Lesley Page, President Royal College of Midwives

2.05 pm The implications for care: An obstetric perspective on 'Listening to parents'
Devender Roberts, Royal College of Obstetrics and Gynaecology

2.25 pm The implications for neonatal care: The neonatologist's perspective
Alan Fenton, University of Newcastle

2.45 pm Pregnancy after stillbirth and neonatal death
Tracey Mills, Lecturer in Midwifery, School of Nursing, Midwifery and Social Work, University of Manchester

3.15 pm Tea and coffee break

3.45 pm A user group perspective: Sands
Jane van Zyl, Acting Chief Executive Officer, Sands

4.00 pm A user group perspective: Bliss
Andy Cole, Chief Executive Officer, Bliss

4.15 pm Discussion panel

4.45 pm Close of meeting

Meeting ref: MBE02

CPD (Applied for)